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Epilepsy

Holly Tolman

Message 25 of 35 Previous Next



To Ann: I'm not sure if this will help you in any way,but I had a grand mal seizure while I was labor nine years ago and I've been to all sorts of doctors and had many tests.Some of the diagnoses have been outrages.Through out these years I've aquired all types of seizures.In 98 & 99 I usually spent ten days of the month in the hopsital because I'd go into status {epilepticus}.Mine was quite strange though,and I amazed the doctors by being able to have alot of medication and still conscious.Being given 9 adivan and still awake was amazing to them.I could get up and walk around,understand what was being said to me,but not talk.I can remember most of these times and I just felt like I was in my own little world,staring off and looking at the walls and ceiling trying to put faces of images out of the stuff on them.My family would keep me in my bed and if it lasted more than two days with the extra meds I was put in the hospital.I couldn't have brain surgery because they don't occur in one spot.I was told it was like a firecracker going off.My status is really different than most.I also can tell its going to happen,my face twitches and my lips get numb,along with feeling strange and scared.My family can tell because I act strange and can see a difference in me.I have a very bad habit of not admitting my feelings to people when this happens.I tell myself its not going to happen.Plus I don't want to have to interupt their plans just to stay with me.I'm stupid in thinking that way and usually let myself go too long without taking some adivan and laying down.My memory is ok,but sometimes I forget and say something totally different.So I look like a liar.But with all the medications and the amount of extremely serious seizures it has effected my mind.What I' m telling you right now is totally off the subject that you were aquiring about I'm sorry .I just wanted you to know what kind of status I have,and if you have the same problem with telling someone,please try to change that.Because I can talk for a few hours before I go into deep.I can stop it with the adivan sometimes too,so ask your doctor for some.It makes you feel almost like a very bad hangover but if it prevents a seizure{WHICH MAKES YOU LIKE THAT ANYWAY}try it.Let me know if I helped you at all,or if I might be able to answer something o.k. holly

 


   
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