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Porphyria


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Replies

Porphyria/Masocytosis
Hi all, I was recently dianosed as having Mast cell leukeamia af...

Kevin
0

porphyria cutanea tarda
I know someone who is a 44 year old male with resistent porphyria...

simon brebner
0

Porphyria, Liver involvement etc
Pleae, I need info regarding above, treatment, long term prognosi...

yvonne monroe
0

Porphyria
I would like any information regarding "Porphyria' and Liver prom...

Yvonne
0

porphyria cutanea tarda
Anyway to help clear up sores? Tried just about everything. Start...

diane
0

Acute Intermittent Porphyria
I am very anxious to get information on meds (activated charcoal,...

Eileen
0

acute intermittent porphyria
Could somebody please email me information on AIP. I have been r...

Eileen
0

AIP PORPHYRIA
I am hoping someone can help me. My husband is 41 and has had th...

Karen
2

Porphyria
I would like some more info on Porphyria Thankyou, Regards,...

Eden Malseed
0

Acute Intermittent Porphyria
My husband is 41 and has had this awful disease most of his life....

Karen
0

Porphyria AIP and Menopause
Anyone w/ porphyria and going through menopause have any recommen...

Debra
0

acute intermittent porphyria
daughter is hospitalized with this disorder. She has very little ...

woodrow wilson
0

porphyria
noticed your message on the post and would like to know where to ...

maureen
0

porphyria
I would like any information on PTC as I have recently been diagn...

Deana
0

Porphyria AIP
Any info about Porphyria AIP and menopause, what might help, anyo...

Debra Lervig
0

porphyria
I have been diagnosed by a M.D. and by a genetic counselor of hav...

Brenda
0

porphyria
I was diagnosed 3 yrs ago with Porphyria ala dehydratase, does an...

Micki
0

Porphyria
My daughter has been diagnosed with this disease recently. It is...

Mary
0

Porphyria AIP
Does anyone have info on Porphyria and menopause? Any help would ...

Debra Lervig
2

Acute Intermittent Porphyria
Hello...I am a 23 year old who was diagnosed with AIP the summer ...

Jessica
1

verigate porphyria
I have had this disease since my early 30's. I'm now 58 and have ...

Patty
2

porphyria
I was diagnosed with porphyria a little over a year ago,I have be...

Joanne
1

Acute Intermittent Porphyria - Safe Drugs
Can anyone advise me if Ditropan or Robinul are safe to use as an...

A Warden
2

acute imermittent porphyria
I recently found out my son suffers from AIP.I would appreciate a...

tammy
5

High Uroporphyrins and Photosensitivity = ?
Hi, I have repeatedly had high levels of uroporphyrins in my uri...

Lee
1

Porphyria
Hi, I'd be interested in connecting with anyone using oral activa...

Leanne
1

Porphyria
I am using oral activated charcoal, it absorbs the fat soluble po...

Leanne
6

Porphyria
I am a 39 yr. old female who was diagnosed with acute intermitten...

Maureen
6

Porphyria
I was diagnosed with porphyria one yaer ago. I can provide you w...

Maureen
4

porphyria
You may be refering to porphyria. There are several porphyria's....

Sharon
4

Porphyria
Porphyrias are a group of rare genetic diseases that can give an ...

J. Neidich
4

proferia
To the person looking for info on proferia. Correct spelling is ...

Gina
0

reply to "proferia" on the email newsletter
I think you may be referring to either one of two conditions: POR...

William Vigus
0

reply to "proferia" on the email newsletter
I think you may be referring to either one of two conditions: POR...

William Vigus
2

Proferia
You are looking for porphyria. There are different types. If you ...

orluinc@aol.com
1

Red Hot Flushing
Hi After all this time, there are still no helpful treatments (t...

Lee
8

acute intermittent porphyria
urgently need help for my wife...

marko
5

PORPHYRIA
I WOULD LIKE TO FIND OUT ABOUT IF THEIR IS A SPECIAL DIETE THAT W...

RITA BARNETT
11

RE: Acute Intermittent Porphyria
I am in the process of being diagnosed with AIP. If anyone else h...

Jayne
1
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