Lisa
Hi Lisa, I hope you are feeling better. As for me I scoped out a new doctor who is an MS specialist, not a nuerologist. I am so tired of the ignoranve of nuerologists...they don't know a thing about caring for MS patients and i know my body well enough to know I have progressed to a worse stage of MS. And I was so right too. After the MS specialist compared my original MRI to the new one I just had he told me straight out I have alot of new stuff going on and I have progressed from mild MS to moderate. I am still fully mobile but have experiencing painful right arm spasity, especially when I wash my hair...my arm goes into this most painful spaz attack and I can't finish my shower. It already happened 3 times in the last month. I also am going thru that electrial shock thing too...what a way to live. Well, anyway the MS specialist put me on 3 days of IV steroids at home and today is the last day for that. He also wants me to go on Beterson> The nuerologist put me on Copaxone 2 months ago but the MS specialist said that takes 9 to 12 months before it kicks in and I don't have that kind of time...so he said the best for me is Beterson. So I asked him how long til I end up in a wheelchair and he replied, I am not going to be to concerned with the mri but to try and keep you where you are at now...but I can tell from his seriousness how bad it will get.......thank god for those antidepressants or I might not be here writing this e-mail. you know what else is mind boggling to me...well, the nuerologist is the one who set up the MRI I had done May 30th, so the hospital called him with the results from the original and new MRI and then I get a call from the nuerologist that he has some good news that some of the original lesions shrunk and some disappeared but I did have a new active lesion on the opposite side of the brain meaning my left side should be the one giving me MS and he didn't see the lesion that was causing my right side to be MSing. Oh, but what a difference the MS specialist attiude was...he said i have to go on Beterson so I can catch up to the progression of the lesions and immediately put me on IV steroids...like I said nuerologists don't know a damn thing about MS, only to write a prescription when they feel like it and collect money. So what I am telling you is just beware and foolow your instints on who to go see for the best care you can get. I hope to hear from you soon, take care Diana...sweetpi359@aol.com