Becky
I was just reading about you're diemma. I have had MS almost 20 yrs. and for some physicians MS is not a diagnosis they like to label someone with. I have also found that going to a neurologist instead of a neurosurgeon is probably the way to go, I also saw 2 neurosurgeons 20 yrs. ago with both telling me they didnt think that was what was wrong. A spinal tap for diagnosis is also another route to go, but keep in mind that it should be in active stages when the tap is done. I hope this helps. It becomes very frustrating sometimes when you know something is wrong and no one can pinpoint the problem. Good luck