Ian
I do feel your pain and I cn relate to what you have because a good friend who lives in Nevada has generalized dystonia. As for me, I have club foot and Writer's Cramp(Focal dystonia)and let me tell you, it sis a real bitch trying to function in this society with this disease. I am sorry it is hitting you so hard. Has surgery been recommended? Write to me if you can. I would like to hear from you....Ian