Wendy
Hi, I as well suffer from this horrific disease. Botox has done nothing for me either. Please tell me more about what kind of dystonia your husband has and what part of his body is involved. Also, I want you to know that we have an internet chat group for us to share our experiences and make friends, all who have dystonia. It's at www.wemove.org. We meet there every night and some are there during the afternoon. I usually just go in at night. We also share laughter, which is much needed when dealing with this monster. If I can be of any help, please E mail me or meet us in the chatroom. The best to you, Wendy