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polymalgia rheumatica

Paula

Message 9 of 25 Previous Next



Hi I have had Polymyalgia Rheumatica for almost 5 years.I have a very good rheumatalogist, he says nor to go down more than 1 mg every 3 weeks or 4 weeks. Sometimes it will be a couple of months or more before you can get down and be reasonably comfortable. I have a hard time when I go down because the first week ot 10 days, your body adjusts to the lower dose. If after a week or so the pain is as bad as it was when you first went down, go back up to where you were..wait a few weeks and try again. This is usually a self limiting disease and often goes away after a year or two. I have had it for almost 5 years but am down to 2 1/2 mg pred ...have tried 3 times to get to 2 and stay there but can't so far. I will try again later this Spring. After I got down to 5, I had to go down by 1/2 milligram and it took quite awhile to get to 3. I had a friend who had this and it was gone and she was off pred in a year. There is nothing you can do to speed up the rate at which it leaves, but it will go in time.Good luck..

 


   
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