Susan Lust
Wow! There are so many of us in the same boat. How come it is such a mystery and we should all go on suffering. The advise given becomes so shallow over time. I have been ill for almost 3 years now. I've tried various approaches to relieve the symptoms. I think the main problem is that we aren't sick enough to warrant staying home. We aren't visibly sick enough for people to even recognize that we are sick. Basically I feel that most people look at me as just being lazy, forgetful and lacking ambition. I have had doctors keep throwing medicines at me month after month in desperation saying " here, try this" and then ask on the next visit "now do you feel... better?" Over the course of the past 3 years there doesn't seem to be much progress in finding some relief for this. Is there anything being done in the lines of Gene-therapy? If I am wrong....please someone set me straight. I am desperately looking for answers. I want my life back!