Susie
I am 42 and have never been "officially" diagnosed with Ehlers Danlos. My son however has. I always looked like my dad and my son looked like me. I never realized it was a "syndrome" until my son's hernia at 5, and his joint pain when he had to walk to school that caused him to first be tested for "rapid aging" and later diagnosed with Ehlers. I have an appointment next week to be typed. It is surprisingly VERY emotional for me. I was called names as a child and I feel as if old ghosts have come to haunt me. When you look 40 when you are 15 it is very hard. Now at 42, I am not sure I want to recall all that. But I feel I should get typed to help my son, who is looking at having children someday and whether or not he can do so without passing on this gene. Nice to know there is someone to talk to.