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Newly diagnosed Ehlers-Danlos

Dawn

Message 5 of 7 Previous Next



Hello, My eighteen month old son was just diagnosed EDS Type III in April. I too am interested in finding more people who have this Syndrome as the geneticist suspects that myself, my husband, or both have it., or, at the very least, the carrier gene. I would really like more info on pain and problems since my son is too young to tell me what hurts, etc. Thank you.

 


   
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