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I know how you feel, I have been living with this 'condition' for the past 15 years. I am a member of a great support group on-line who have many health suggestions, doctors to contact and support for you. Please log on to two different web sites, one is in the UK, but this will explain the basics of there work and give you other sites in your area. The main support group is in the US. The web sit is vulvodynia.com this will allow you to go to the e-group to join us in fighting this terrible condition. Good luck Joanne in Canada