Elaine Hatfield
I have had three children with Neutropenia. Craig born in 1981, clarke born 1987, kurt born 1991. with a daughter Jade born 1984 without the condition. I too have found it difficult over the years to gain information as it was only five years ago we were told all the boys had the same condition. As it has shown intself in different ways with each child. From the mild to the severe. I will gather as much information as I can to send in the next few days. Since last July Kurt has been on GCSF but as he cannot suvive without steroids as well at the moment, we are trying to balance the doses of both GCSF and steroids.