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leukodystrophy

Gloria Champine

Message 2 of 2 Previous



I read you message and feel some of your pain. My 8-month old granddaughter has just been diagnosed and started similar to your children. Severe colic for 4-5 months, now on a formiula which she can tolerate, but cannot roll over or sit up, tho she tries. She is a beautiful child and I would be interested if you could share any information you receive from your message. I live in Virginia and there are many research hospitals within traveling distance if I just knew where to turn. My best wishes to you, Gloria Champine grc6431
12

 


   
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