Abdul Manaf
MY ELDER SON IS 5 YEARS OF AGE. IS SEVERELY DISABLE. LABELED AS NON PROGRESSIVE LEUKODYSTROPHY AS A DIAGNOSIS.BUT NO ONE COULD TELLS ITS CAUSE.OUR MARRIAGGE WAS FIRST COUSINS MARRIAGE. OUR DAUGHTER,2 YEAR NOW, IS A NORMAL CHILD. NOW WE HAVE 3 MNTHS OLD SON AND HE IS BECOMMING A VICTIM OF THE SAME SEQUENCE. ALL STARTS AT AGE OF 6 WEEKS WITH FEEDING PROBLEM,VOITING, STIFFNESS, DEVELOPMENTAL DELAY, EXCSSIVE CRYING ETC,ETC.AND BED RIDDEN AT LAST.DOES ANYONE KNOW AN EXPERT WHO COULD SOLVE THE MYSTERY? PLEASE HELP BEFORE WE LOSE ANOTHER SON.I REQEST DOCTORS WHO ARE EXPRT IN INBORN ERRORS OF METABOLISM, LEUKODYSTROPHY AND CEREBRAL PALSY TO SAVE OUR CHILD EFORE IT IS TOO LATE. FROM MR AND MRS MNAF FRON UNITED KINGDOM.ENGLAND.