phyllis
Christy, First I am so very sorry to here about your daughter. My 14 year old son was diagnosed in Aug 99 with it. I would really like to speak with you by phone. If you could e-mail me at segplg@brantleytel.net, I will give you my phone number monday and maybe I can tell you my experience. It's too lengthy here, but he was misdiagnosed also. By the grace on God, I got him somewhere else in the nick of time. I will be out of pocket until 12/27.