Kathy A
My son has had this problem since he was 6 months old and now he just turned 16. Primarily the spots are on his arms and hands now, but they seem to be getting worse all of a sudden. Has anyone experienced that same problem. Also he is getting headaches and stomach aches also now. If anyone has any new information about this disease, please write back to me. Very few doctors even know what urticaria pigmentosa is let alone treat it. Thanks Kathy A