Kevin
Message 1 of 1
Hi all, I was recently dianosed as having Mast cell leukeamia after being misdiagnosed as having Porhhyria. The symtoms are similer...so is the pain and skin problems. This was near fatal for me on various occasions as I was perscribed the wrong medication, which nearly killed me....not sure what is worst...the disease or the incompetance of so called doctors, of which I have seen and baffeled 30 of them throught europe for the last year. I'd love to chat with anyone about this is they wish. Regards Kevin