Margot
I've just been diagnosed as well and am seeing a neurosurgeon for a consultation in mid February. I'm in PA and will see someone in Philly who looks great on paper, at least. I also have Ehlers Danlos Syndrome which might be related somehow- research is just beginning on the topic. I'd love to know how your surgery went, Elizabeth, in terms of recovery time and if I should get used to short hair? :) I've looked at the Chiari Institute's website and, yes, I wish I could just go there too! I hope they are generous with their knowledge. The limited literature I've looked at does not seem to claim that the surgery alleviates *all* symptoms. I keep reading, "*some* patients experience reduced symptoms". Hmmmm ...Has it been worth it Elizabeth?