marlene stewart
i was diagnosed in november of 2000 with pulmonary fibrosis. i was put on prednisone and imuran. In early 2003 i was put on oxygen 24/7. It was 2 liters at first, now i'm on 3 liters when i take a shower or do any kind of physical thing. My last breath test said I have only 30% of my lung function. I cough almost all the time and if i don't cough often enough i lose my breath, have discomfort in my lungs and i get panicy. my Dr. put me on actumme last month but no change yet.I also use albuterol inhaler and i wes prescribed oxycodone for slipped and damaged discs in my back and i found that the oxycodone relaxes chest muscles and lets me breath much easier. Has anyone else used pain meds for this condition? I am wondering what the very last stage is like. Who knows? i may already be there. hahahaha. I would love to hear from some one who has tiis disease or a family member witl PF. thanks and hope to hear from you