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Help me understand ehlers danlos syndrome please

Teresa Hardin

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Hi my name is Teresa. I have just recentley found out that my 4 year old grandaughter has eds. I can't begin to say how my heart is breaking and how much pain I am in. I would like to learn more about eds so that I will know how to deal with it and how to help my daughter and grandaughter.Is it crippling? we don't know yet which type she has. She bruises easy, heals very slow and her legs bow backwards like a C. Would really appreciate hearing from someone no matter how bad it is I really need to know. Thanks, Teresa

 
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