Betty
I was curious when I read your letter about your efforts to get relief from Fibromyalgia symptoms... DID ANY OF THE DRS. YOU WENT TO GIVE YOU ANYTHING FOR THE SLEEP DISORDER? There is a definate sleep disorder that goes with Fibromyalgia. YOU might be able to go to sleep, BUT you lose the ability to go into REM SLEEP. Most DRs. do give a prescription for Flexeril or Cyclobenzoprine (generic) Both help....These are a mild muscle relaxer and for some reason IN FMS/CFS patients this will enable them to get a more restorative sleep which does help some. Sometimes nothing seems to help but if you don't take something so you can sleep properly it is worse. MY stupid arm (near the elbow) burned constantly for over a year. ? I don't know why, but suddenly it quit. I've also read that we should NEVER NEVER eat foods with or use Aspertaime. (the artificial sweetener) and MSG. MSG doesn't seem to bother me...but my own observation is that I think the Aspertaime does...(more of the CFS part) I've noticed that not long after eating Chinese I am totally fatiqued....but then it has always done that to me and long before the FMS. I can totally relate with your going from Dr. to Dr. There are few that are sympathetic to this disorder. I think many still think...it's just us and nothing is wrong except maybe something emotional and not wanting to really work. Funny thing is..my research of FMS keeps finding that the majority of people with it are the type A.... work work work...those that seem to thrive on a busy hetic schedule...Even with FMS I push push. Seems like I accomplish less and less... I also have several other auto immune things going on...Ankylosing Spondylitis...which is disabling me very very fast.