linda
I also have a famiiy member who has a problem concerning white matter. I got a lot of info from her; she is a nurse who works solely with patients who suffer from problems of this kind. There are so many diseases having to do with white matter, you may also want to search the United Leukodystrophy Foundation. My significant other was diagnosed 3 years ago with ALD, which slowly causes deterioration of the myelin sheath; (the white matter that covers the nerves of the spinal column.The ALD-AMN group also has a chat list, we have met a lot of people all over the U.S. and it has helped us tremendously. If I can be of any help to you, please email me.