Karen
I have EDS Type 1. It took over 6 years with all kinds of doctors to finally find out. It was my dermatoligist that told me I had it and what it was all about. My rhumetologist was pretty knowlegeable about EDS also. There are few Dr.s however that have ever heard of it or seen a patient with it. I was diagnossed with Chronic fatigue, fibromyalgia, Irritable Bowl Syndrome and the list goes on. I just found a cardiologist that is helping me but known of the Dr.s have treatments or drugs to end the symptoms. Only suggest exercise and careful eating habits. I do take pain meds once in a while if needed. Good luck.