Evelyn Bennett
I was diagnosed with SS in 1988, and it's true not many doctors knew about it, however more and more are leaning about it. The Sjogren's Syndrom Foundation Inc. can give you a lot of info. Their phone number is 1-800-475-6473. Membership is $25/yr which entitles you to the Moisture Seekers Newsletter. I lead a support group in central Calif. There are many across the country. It is not terminal. It is an autoimmune disease. Treatment is symptomatic. The best doctor to help you is a Rheumatologist. The new address for the foundation is:8120 Woodmont Av., Suite 530, Bethesda, Maryland. I hope this helps you.