Nancy
I have had this diagnosis for 2 years now. I was on predisone and my sed rate went from 99 to 87. Now I am off of predisone and my sed rate has jumped to 115. I am told a high sed rate is the indication of PMR. My neck, shoulders, upper arms, lower back and sometimes my legs and hands hurt so bad I can not stand the pain. Sleeping at night is almost impossible and getting up in the morning is very painful. Getting in and out of cars is painful. There are lots of people I know with FMR but I do not know of anyone with PMR until I read this article. My question is..Are there any support groups out there for people with PMR? Please help.