Lorraine
You have found a great place to find all the support you need. We are a support group of sorts for people all over the world with Ehlers. Ceda stands for Canadian Ehlers Danlos Association. I myself am 36 with Classical type formerly type 1. Please join our group all are welcomed and you will be glad you did. Your post was sent to our list from one of our members reaching out to you already.Bye for now hope to talk soon.