Hannah
Hey there, not sure how old this is but I just saw your post whilst I was looking up some symptoms I'm having at the moment. I've had Chronic Neutropenia my whole life - was diagnosed at 10 - welcome to the club!
How are things going for you? Have you been sick lately? Silly question - we always are.
I have yet to hear of any support groups but finding a GOOD hematologist / oncologist has made a huge difference in my life and health.