Mary
Hi. I am in the same situation as you. My 9yr. old granddaughter , who lives with us, just got diagnosed with SC last week. The doctors just said what could happen. They didn't really explain what to expect to go thru with this illness. They pretty much just said what it could effect. It started last week with tremors in her right arm. I took her to the doctor, he sent us to the emergency room. There the testing started. They admitted her for further testing. Since then it has been trips to different doctors.She has seen the neurologist, cardilogist & rheumatoidologist. We have to wait two weeks for the results of the exstensive blood work. We are now starting to notice some of the other emotional problems. She is crying alot, complaining of being out of breath, & tired after a little exsertion. Would like to talk with anyone with info on this illness.