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50 year old with Fibrous dysplasis since age 12

KAYE

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HI CHARLIE-WHAT EVER INFORMATION YOU CAN SEND ME ON FD WOULD BE APPRECIATED. I'VE BEEN HAVING EXTREME HIP PAIN FOR OVER 2 YEARS. HAD BIOPSIES DONE 1 YR AGO WHEN ?TUMOR WAS DISCOVERED. I AM SCHEDULED FOR SURGERY 10/18 TO HAVE A OSTEOID OSTEOMA REMOVED. LAST WEEK DRS FROM BOSTON WHO REVIEWED MY RECORDS FOR MY DOCTORS IN MILWAUKEE ARE NOW QUESTIONING WHETHER OR NOT THIS SO CALLED TUMOR IS A FIBROUS BONE DISPLASIA. SO I'M VERY CURIOUS TO FIND WHATEVER INFORMATION I CAN ON THIS SUBJECT MATTER. HOPE YOU CAN HELP ME. THEY TELL ME THIS IS A CHILDHOOD DISEASE AND I AM 44 YEARS YOUNG.

 


   
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