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desmin storage myopathy

Brian Wolfe

Message 5 of 7 Previous Next



I also have Desmin Storage myopathy. It was also called Myofibrular myopathy, but I can't seem to find any references on that on the internet. I can't find any information on it and my Doctor hasn't beenmuch help due to lack of information that is available. I know there are 3 types of it. I am not sure wich I have because they all can effect the heart and I have had a heart transplant already.

 
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