Luci
Good luck with your second opinion. Do not give up. If you have to travel to have a good dr. do your surgery I would do it. Reseach doctors on the internet. I traveled 5 hours to have mine done and it was worth it. I will keep you in my prayers. Feel free to e-mail me. I also had/have acmw/syringo. Looseegoos@aol.com