christina
I have gone through this my whole life. Everything changed for me when I started seeing a Rheumatologist to treat my immune system instead of all the infections, hives, rashes, and all the other stuff that seemed to compound when I would get sick. I can't express how nice it is to have someone believe me and not think I am nuts. Good luck! I visit a support group for this and I know that there are others who have had good luck with pediatric rheumatologists. Christina