avalon
i have had the same severe condition for 10 years now, and have been unable to work for the past 9 years. i too have had all the tests, scans etc, with nothing found. my problem here in the uk is to find a doctor to take the condition seriously-even after all this time. i can only suggest that you wear uv shades-especially with side shields, but dont let the doctors fob you off. if i find any useful information i will certainly pass it on