Connie
My mother and her siblings have this disease. We have lost my mother and 2 other sisters. They got to tracing this and my grandfather had it as well as his father. Back in the early days they used to call it bleeding when they took blood. I have been checked and so far everything is fine but I do tests once a year when I have all my other testing done. I would like to chat with anyone more about this disease and pass all this information on to my remaining 8 Aunts and Uncles.Any help would be appreciated.