MARGARET B.
THIS IS IN RESPONSE TO KELLY BERTRAM, HI KELLY IF YOU WOULD LIKE, YOU CAN E-MAIL ME AND MAYBE I CAN BE OF SOME SUPPORT, I HAVE HAD RSDS FOR 7 YEARS NOW AND WASN'T DIAGNOSED FOR 18 MONTHS AND EVEN THEN, BECAUSE OF ALL THE PROCEDURES I HAD DONE DIDN'T TAKE ALL THE PAIN AWAY, I WAS THEN TOLD BY THE DOC'S THEY WASN'T SURE IF IT WAS OR NOT ALTHOUGH I KNEW I HAD MOST OF THE SYMPTOMS AND THE FIRST NERVEBLOCK PROVED IT BY THE GREAT TEMP. CHANGE. I FINALLY GOT A DEFINITE DIAGNOSIS AFTER 5 YEARS. I ALSO WROTE #38 IN THIS FORUM. BUT IF YOU WOULD LIKE SOME SUPPORT AND POSSIBLY SOME HELP PLEASE FEEL FREE TO E-MAIL ME. I HAVE ONE E-MAIL ADDRESS, (THE FIRST ONE LISTED) FOR MY RSDS FAMILY MEMBERS, SO IF YOU WOULD LIKE TO E-MAIL ME I PREFER USING THIS E-MAIL ADDRESS FOR THIS SO I CAN AVOID ALL THE JUNK MAIL. BUT EITHER IS FINE. I KNOW HOW FRUSTRATING IT IS BY JUST HAVING THE PAIN, BUT TO NOT BE ABLE TO GET A NAME FOR IT, MAKES IT EVEN MORE FRUSTRATING... SO I'D LIKE TO TRY TO HELP AND IF NOTHING ELSE AT LEAST LISTEN. I HOPE TO HEAR FROM YOU SOON. MARGARET