HAZEL
I WAS DIAGNOSED WITH THIS SYNDROME- I'M 26 YRS OLD -LOOKING FOR SOMEONE TO TALK TO WITH SAME SYMPTOMS- I DON'T HAVE INVOLUNTARY CLOSING OF THE EYELID- IT'S ACTUALLY INVOLUNTARY OPENING OF THE EYELID- THE RIGHT ONE- HAPPENS WHEN I TALK-EAT-WRITE- I WON'T GO ANY WHERE WITHOUT MY SUNGLASSES-AND I WON'T GO ANYWHERE AFTER DARK- I FEEL LIKE I'M IN A PRISON ALMOST-SO ANYONE OUT THERE THAT WOULD LIKE TO DISCUSS JUST DROP A LINE?? SEE YA!!!