Terri
My sister has a blood disorder that no doctor has been able to diagnos. She has been hospitalized 10 times since May, 1999. She has 7 clots on her brain stem and 1 found only a week ago in her lung. She is now at UCONN Med. Ctr. and was told that she has tested negative to all Known Blood Disorders and now has a blood disorder they can't treat or name. Shelli is a mother of a 1 yr. old son and 4 yr. old daughter and is told this could be terminal. She is only 29 yrs. old. Does anyone has any suggestions on what to do? One doctor thought she had the disease Lupis but she has tested negative to it twice but has all symtoms. We are frustrated and scared!