Valerie
Dear Valerie, My name is Laura, and I am 36 yrs old. I was first diagnosed with RP 1 year ago. I have 10% of my peripheal vision left. I have severe night blindness, as the disease defines.. RP is genetic and therefore I have lived with this RP for my entire life, however It went undiagnosed for many years, as you can see. NO one in my family can be traced back to having RP. Both my parents are alive and have been tested.. My grandparents as far as I know did not have RP.. I have been to specialists and have been told time and again, that unfortunately, there is no cure for RP.. I do take vitamins containing Lutein, for the eyes, even though this has not been proven to help, it certainly cannot hurt, and, It makes my parents feel better, as they thought of the idea. :) I cannot be of much help in giving you any ideas how to assist your son, except for the fact that he can live a normal life, as I do.. I do not drive at night, I am not allowed, I do still have a drivers license to drive during the day.. as I said I have adjusted to living with only 10% peripheal vision, and do not know any different.. as I did grow up having this, when I was young I remember having difficulty seeing in the dark. but never gave it a second thought.. Nor did i ever mention it.. I just thought that that was the way it was.. I hope your son can adjust to this. As it can be a bit confining...Please write me again, and let me know how your son was diagnosed I would love to speak somemore to you. Laura email me at dlop143@aol.com :)