Marcie Kustwan
First of all, I am so sorry for your loss. Unfortunately, I don't know exactly where to look for answers but I can give you some ideas. Look for the Medical Transcriptions desk at PubMed by accessing Medline. Also, you could check Northwestern University Hospital online and University of Illinois online. I have been searching for information on a disorder called septo-optic dysplasia. I have a two month old daughter who was just diagnosed with this and these sights were very helpful. If you explain what neonatal hemochromatosis is I might be able to provide you with more sites to search.