Denise Gilkie
Hi,Ihave a 10 year old daughter with achromatopsia.She was diagnosed when she was 1 year old.I know what you are going through and what I am still going through.You must constantly keep on top of the school and teachers.Each year a meeting is set up at the beginning of the school year with myself and my daughters itinerant teacher as well as the teachers she will have.I also have a large binder full of information that I have gathered from the Achromatopsi Network.I give the teachers this binder to look over and get back to me if there are any questions.If you would like to contact me please do so.I know what you are going through.