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Neurofibro matosis

Vivienne

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i was dignosed with neurofibro when i'm in my teens about 14 or 15 yrs old. My parents and siblings don't have any except me. I'm not sure whether which stage i'm in, (1 or 2) but i got quite a lot over my hands, and back. My face started to show. My legs and tighs too, all with different sizes, but all are "soft type". I was told by doctors that neurobifro cannot be cured, is this true? Can it be done through surgery?? is it expensive? Which country do you recommand? I'm now in mid 30s.... I've been feeling very inferior ever since i got this "sickness". Please advise me. Thanks and appreciate

 


   
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