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Ehlers-Danlose Syndrome

Sharon

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Yes it is certainly possible for your child to be the first ever in both families to have EDS or other in the families could of had EDS but not as severe. When the child is the first in the family ever to have EDS etc it is called a mosaic or spontanous mutation and this entirely possible. I hope that your son is coping with his EDS as I know how hard it can be (I have EDS- hypermobility form).

 


   
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