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Undergoing surgery for NF related scoliosis

Anndrette Davies

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Hi everyone, I have a 17 year old daughter who is about to undergo major spinal surgey for a dystrophic dislocation of her spine, after mush research and having seen many many Dr's there is no alternative she experiences chronic back pain, and progression of the curve may result in paraplegia. I am interested to hear from anyone who has expereicned this or who can offer any experiences they may have had. Janelle is loking at possibly 6 months in hospital. Thankyou for your help

 


   
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