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klippel feil syndrom

barbara

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Hi, I'm 40 years old and from Hamburg in Germany. My mum, my brother and me and my son all have something which accurs very seldomly named Klippel Feil Syndrome. We'd like to get to know people with the same 'disease', my son would especially like to know if and where there is a doctor who is specialized on this. Could anyone give me an adress? Thank you
12

 
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