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Microvillus Inclusion Disease or Congenital Microvillus Atrophy

Milen Separovich

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I am still looking around the world for anyone who has or have had a child with this disease. This condition is rare and, at the moment, there isn't any way of knowing if the unborn child will have it. This disease is fatal. I have just lost my baby girl of 33 days to this and can't find anyone who I can talk to? Please help.

 
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