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Microvillus Inclusion Disease or Congenital Microvillus Atrophy

Milen

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I have had a baby girl with this disease that took her life at 33 days. I have not spoken with anyone in the world who has had or have a child with this disease. It is very rare. If anyone has known of someone who has had any experience with this disease would be of great help to me as there is no one who can talk to us about it.

 
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