STEVEFFAHY
Message 1 of 1
MY DAUGHTER IS 7. SHE HAS BEEN SICK SINCE 4 MO. OLD. TEST WERE DONE BUT THEY COULD NEVER DIAGNOSE HER. AT 6 WE FOUND SHE HAD MILD SCOLLIOSIS. SHE NOW IS 23 DEGREES AND SLEEPS IN A BOSTON BRACE. SHE HAS SYRINGOMYELIA. WE HAVE BEEN TOLD BY THE DOCTORS IN MEMPHIS TO WAIT TILL SHE CANT TELL HOT FROM COLD AND HAS MUSCLE WEAKNESS. THEN,,,THEY WOULD DO SHUNDTS. WE TOOK HER TO DR JERRY OAKES AT UAB CHILDRENS HOSPITAL. HE SAID SHE IS TOO LITTLE TO JUST SIT AND WAIT. HE STRONGLY DISAGREES WITH SHUNDTING. HE SAYS THEY DONT WORK. HE WANTS TO DECOMPRESSION SURGERY ON THE BASE OF THE BRAIN AND SKULL TO WIDEN THE PASSSAGEWAY SO THE FLUID WILL NOT BE RESTRICTED. SAYS THERE IS AN 85% SUCCESS RATE THAT THIS WILL CORRECT HER SCOLLIOSIS AND MAKE THE SYRINX GO AWAY. WE TOTALLY FELT CONFIDENT IN THIS. WE ARE JUST HAVING PROBLEMS WITH CIGNA INSURANCE BECAUSE HE IS NOT HMO. WE ARE DOING AN APPEAL BUT IT IS NOT GOING THAT WELL. JUST WONDERED IF ANYONE OUT THERE CAN RELATE TO THIS CONDITION. WE ARE SO BROKEN HEARTED BY INSURANCE. ANY ADVISE OR RESPONSE WOULD BE GREATLY APPRECIATED...THANKS STEVE FAHY