carol
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My 3 year old was just diagnosed "officially" with mild PVL.She underwent heart surgery at 4 mths old and was placed on E.C.M.O. because of severe complications which PVL is possibly linked to this. She was just released from Early Intervention this Febraury because she is doing so well and is above her age level in everything! I am currently seeking early intervention since we have justlearned of the PVL. Her neurologist feels there is no need..I disagree.He mentioned as she gets into school age she will have some mild learning disabilities such as in math etc, but nothing severe. I would like to if anyone has a child that was placed on E.C.M.O who is older know and if any side effects, as well anyone whos child has mild pvl and sid effects.