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11 yr old daughter has Dermamyositis

Alyn Keiser

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Hi my 11 year old was diagnosed with Dermamyositis-JDMS-does anyone know anything of this or of blood levels or the drugs they use this has been going on for atleast 2 years and they never listened now they do and this is what she has with ck levels of 4800 still a wek after starting predisone and plaquinil next month is prbably methetrexate? anyone with info or kids with this please emali me I am totally lost my son has cp but that is easy compared to this as I KNOW what is what JDMS isnt as simple as you dont know where it will lead it can get worse? thanks

 
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