Tammy
I'm looking for information on chronic multifocal osteomyelitis for my 7 year old daughter who has been diagnosis with this.It started with swollening in the right ankle with all testing and biopsy results negative. Then months later the left ankle was also swollen with again more testing( culture,bonescans,nucular,blood,mri,bone denisty)with 2 biopsy's done and again all negative.No puss in each biopsy.She has been in alot of pain even with her taking Naproxex the swollening not going away.Even the best doctors in B.C. Canada not knowing how she got this.I've also been told by doctors that there is only 12 cases in B.C with this!!Please if anyone can help me to learn more or even support groups,or anyone with the same kind of case--Please e-mail me Thanks a MILLION!!!! Tammy